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CEDAR's Value in Health (ViH) work

Welsh Translation and Validation of PROMs

As part of our Welsh language provision, the Welsh Value in Health Centre provide all nationally adopted PROMs in Welsh as well as English. As few PROMs tools are available in Welsh, Cedar are responsible for negotiating their translation with the licence holder.

National PREMs refresh

CEDAR is collaborating with Welsh Government to conduct a 'refresh' of the core set of Patient Reported Experience Measures (PREMs) to ensure the core set remains relevant to current service provision and healthcare services.

PREMIERE Study

Patient-Reported Experience Measures in Vascular Surgery Enhancement Study (PREMIERE) is a sequential mixed-methods study using focus groups and interviews to develop and validate a vascular PREM tool.

Patient level PROMs visualisation: a narrative review

Cedar has produced a narrative review on the topic of Patient level PROMs visualisation. This important and informative report is another output from the ongoing collaboration between Cedar (Cardiff & Vale UHB) and the Welsh Value in Health Centre. 

PROVISION

A qualitative study using focus groups to explore patient views on the visualisation of patient-level patient-reported outcome measures (PROMs) in three exemplar clinical areas

PROMs following cataract surgery

Multiple analysis projects aimed to explore changes in PROMs responses after a cataract procedure using data collected on the National Platform.

Shared Decision-Making in Lymphoedema

The purpose of this project is to deliver a shared decision-making Train-the-Trainer course to members of Lymphoedema Wales. At the end of this pilot, the Train-the-Trainer course will enable rollout of shared decision making to all Lymphoedema Services in Wales using the developed decision aids to support.

PROMs Advice and Licencing

The Cedar team are responsible for supporting clinical teams in identifying appropriate PROMs tools for use across Wales, and can also support local teams in providing feedback and advice on PROM selection.

Spinal Surgery Patient-Reported Outcome Analysis

Working alongside clinicians and Heath Board information teams, the aim of this project is to identify any differences in PROMs score as a result of different kinds of different patient spinal surgery pathways (Lumbar, Cervical, Intradural, Tumour, Trauma, Infection).

Testing of the National PROMs Platform's Scoring Algorithms

Cedar carry out testing of summary scores of PROMs questionnaires derived from algorithms for use in the Welsh Clinical Portal and stored in the Data Warehouse

User Acceptance Testing of the National PROMs Platform's e-forms

Alongside the WVIHC’s Implementation Team, Cedar performs user acceptance testing on all e-forms included on NHS Wales’ National PROMs Platform developed by Digital Health and Care Wales.

Cardiff South West Cluster Evaluation Support

Cardiff South West cluster comprises of 10 GP practices which cares for 60,000 people in areas of high deprivation. Support is offered to people with complex needs linking them to care in their local community. Cedar is supporting the evaluation of this project by gathering qualitative data, interviewing staff and patients. As well as providing evidence of improvements in patient care, this is also providing feedback on further potential improvements, and learning points.