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Patient-Reported Indicator Surveys (PaRIS) and Population Health Survey for Wales

Background 

Led by the Welsh Value in Health Centre (WViHC), with support from CEDAR, Wales is one of 19 countries working with the Organisation for Economic Co-operation and Development (OECD) to deliver the international Patient-Reported Indicator Surveys (PaRIS). The PaRIS survey will be the first international survey of patient-reported health outcomes and experiences of people living with chronic conditions who are treated in primary/ambulatory care settings. As well as contributing to the international survey, a wider sample was taken from Wales, which forms the Population Health Survey. 

CEDAR’s role 

Alongside the WViHC and Digital Health and Care Wales (DHCW), CEDAR undertook the Welsh translation of the survey and designed the sampling strategy. CEDAR have also been involved in the analysis and dissemination of data analysis using the wider Population Health Survey.  

Findings 

The OECD flagship report has been published here. 

The data that was collected is undergoing analysis with several outputs currently in progress. These include: 

  • Survey implementation – Describing the implementation of the OECD PaRIS project in Wales and the challenges it needed to overcome to achieve success. Wales obtained one of the largest and most comprehensive datasets across all PaRIS participants, and extended the scope of data collection to facilitate further healthcare services improvement in Wales. 
  • Diabetes data analysis – In diabetic patients, aged over 45 years in Wales, higher levels of confidence to self-manage health conditions was associated with better wellbeing and reduced odds of having an emergency hospital admission.
  • Assessing the association between self-reported pain levels and (i) experience of shared-decision-making, (ii) perception of the healthcare system, and (iii) health literacy in adults aged over 45 years old within Wales. We have shown that a lack of shared-decision-making, lower health literacy level and lower trust in the healthcare system were all associated with an increase in self-reported pain levels.