Short title: PROm VISualisatION (PROVISION)
Full title of trial: A qualitative study using focus groups to explore patient views on the visualisation of patient-level patient-reported outcome measures (PROMs)in three exemplar clinical areas
Study design: Pilot descriptive qualitative study using focus groups with patients from 3 exemplar clinical specialities
Chief Investigator: Dr Laura Knight
Sponsor: Cardiff and Vale University Health Board
REC approval: 22/WM/0280
IRAS: 319643
Funding: Internal funding from the Welsh Value in Health Centre
Trial registration: TBC
Study protocol: HERE
Patient-Reported Outcome Measures (PROMs) are standardised questionnaires that are completed by patients to gather their thoughts of their condition, well-being, or their perception of their health in relation to specific diseases or conditions. The collection of PROM data is widespread across the UK and is used by clinicians, the government and in research. However, patients often complete PROM questionnaires but are not able to see or review the data once submitted, so the use of individual PROM data by patients themselves is limited.
Interest is growing in facilitating patients to interact with their PROM data to i) improve patient-clinician communication, including conversations about the likely benefit of treatment; ii) promote active patient involvement in their care; iii) improve quality of care; iv) monitor and track changes in patient outcomes; v) alert patients to episodes of harmful health decline. For the information presented in an online tool or dashboard to be useful to patients, it needs to be accurate, easily interpretable and meaningful, with appropriate context. However, little is known about what and how patients might want to visualise their PROM data.
The PROVISION (PROm VISualisION) study aims to build on what we know about the value of PROMs as an aid to patient communication by exploring patient perspectives relating to how PROMs can be visualised.
If you would like to take part in the PROVISION study and suffer from a long-term condition requiring consultant-led care, or have just had or are awaiting a surgical procedure we would like to hear from you. Click here for more details. Thank you.